The Matthew Evangelista Foundation was created on August 10, 2004 by the family and friends of Matthew in hopes of one day helping to find a cure for Sly Syndrome. By creating this organization, we hope to achieve the following goals:
- Raise awareness in the community (both medical and lay) about Sly syndrome
- Educate the public about Sly Syndrome
- Raise funds for research to eventually find treatments and a cure for Sly Syndrome
Through our efforts, we hope to assist other families whose children have been diagnosed with Sly Syndrome by informing them of available resources and treatments. We also hope to reach those families whose children have not yet been diagnosed with this disorder so that through our awareness campaign, they too can recognize the signs and symptoms of this illness and receive the proper medical care. Thirdly, by raising awareness and educating the public, couples planning to have children may become aware of their risk of having a child with Sly Syndrome and other mucopolysaccharide disorders.
Our organization is also dedicated to increasing research funds and efforts towards understanding Sly Syndrome and other MPS disorders. We are committed to continued fundraising efforts through annual run/walks, mail campaigns, and our website.
Fund proceeds will be utilized towards research in finding a cure for Sly Syndrome and assisting health care organizations caring for these children. The Matthew Evangelista Foundation is a 501(c)(3) tax exempt charity.
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