Honoring Children with Rare Diseases

In April of 2015, Helen (Matthew’s mother) was invited by Dr. Kakkis and Ultragenyx to attend a conference in San Francisco honoring children with Rare Diseases. Helen and her family attended this conference and represented Matthew and informed others of his foundation and his current condition. While there, they visited Ultragenyx (Dr. Kakkis Pharmaceutical Company) where they saw that a room had been dedicated to Matthew.